Na Ethoxide

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Sat, 16 Jun 2012 13:22:04 -0400

weirdredlight: The Distillers - For Tonight You’re Only here to...

Wed, 13 Jun 2012 16:15:33 -0400

weirdredlight:

The Distillers - For Tonight You’re Only here to Know

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Wed, 13 Jun 2012 15:45:47 -0400

BeautyBlog

Sat, 09 Jun 2012 11:35:00 -0400

Started my own BeautyBlog :)

Just did my first review :) Check it out if your interested!!!

http://naethoxide.blogspot.ie/

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Fri, 08 Jun 2012 16:10:00 -0400

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Wed, 02 May 2012 09:03:10 -0400

Happy Birthday to the baddest ass heroine, Lisbeth Salander,...

Mon, 30 Apr 2012 16:30:13 -0400

Happy Birthday to the baddest ass heroine, Lisbeth Salander, tomorrow I will started the next book in the series, the film sucked in comparison

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Mon, 09 Apr 2012 15:20:33 -0400

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Mon, 09 Apr 2012 15:12:54 -0400

STEROIDS ARE BAAAAAAD

Mon, 02 Apr 2012 16:34:00 -0400

So I’ve been on a reducing dose of Predisolone steroids for weeks now and wont be off them completely till the end of April!

BUT OMG I CANT STOP EATING….. I’ve eaten more today than I have in the past month combined!!!!!!! Its so wierd, to have the sensation of hunger once again! Its a really nice feeling in comparison to full bloated pains!

I wont fit into any of my normal clothes at this rate…. and yes MOONFACE is back again!!!!

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Sun, 01 Apr 2012 12:27:00 -0400

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Sat, 31 Mar 2012 14:57:52 -0400

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Sat, 31 Mar 2012 14:47:41 -0400

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Sat, 31 Mar 2012 14:45:52 -0400

Our Bucket List :)

Thu, 29 Mar 2012 06:19:19 -0400

So the boyfriend and I are currently compiling a “bucket list”, which I’m going to post up on my page. We decided to try do this together because with no college to go to, I’m starting to lose ambition to do things and I get bored easily! Plus I think it will be fun thing to do! :) Its not conclusive but its a start.

And today I will probably start writing reviews on some of my new beauty products :)

Accident and Emergency, so it all begins again

Sun, 25 Mar 2012 19:40:00 -0400

So the past couple of days, have been like no other. Last Bank Holiday Monday, I had to be rushed to Blanchardstown Hospital at 4:00am in the morning. For the past ten days or so I had been experiencing the general Crohn’s symptoms and flare ups, getting horrible cramps, so much so that I hadn’t been getting out of bed. So as I was getting used to time wasting away in bed, on Monday morning my body said ‘NO MORE’ and I resigned myself to “Zowie 0 - Crohn’s 1”. As I was rushed by the ambulance into hospital, it felt like I was being physically stabbed in the abdomen, words cannot describe the pain which I endured.

This was first time arriving at Blanchardstown hospital, at this point I was screaming with the pain. They propped me up on a bed, fed a line into my arm and gave me some Paracetamol by IV. Needless to say the Paracetamol didn’t help me that much, I was beyond that pain, so I was given Morphine immediately IV. The details of what happened next are a bit obscured as all I remember is a sharp taste in my mouth, feeling lightheaded and conking out for the night and in and out of sleep much of the next day. Overall though I felt no pain and it was a sense of bliss. God love my mom she came and visited 4 times that day and I couldn’t help but sleep, I hadn’t had proper sleep in weeks with being up all night running in and out of the bathroom with the Crohns. My body was like a human pin cushion, I kept getting jabbed with Buscopan, stemtil and tramadol in various different orders. I don’t mind that so much, I’m actually okay with needles to a certain point.

I was immediately fasting, and awaiting tests, firstly I went for a chest and abdomanal x-rays. I seen my team’s doctor, he informed me that he wasn’t fully convinced that I had Crohns disease even though I have picture perfect symptoms for it. My world completely fell, my stomach was ill, I was awaiting new treatment for Crohns Infliximab, which I was going through hell and back for! And now I was being told that it might not now be Crohns and have to be treated symptomatically. Needless to say I broke my heart crying for hours on end, at the thought of starting this journey with this chronic illness all over again from the start, when I thought i had come so far. Anyways while trying to get my head and self together, a few hours later I went for an ultra-sound, better known as ‘jelly on the belly’. To my surprise, she spent quite a long time examining my stomach area, making me change position constantly. She even asked the another opinion off another radiographer about a “possible” enlarged spleen and nodes where there shouldn’t be. I hadn’t expected any bad news from this test, so when she was alone I asked was everything okay? She replied with “I’m not entirely sure, we will need to compare the test to others such as bloods first, before we know, but you could have a possible severe stomach infection.”

I could barely keep my eyes open, with the heaviness from the morphine injection, I felt truly like a zombie. Even the staff nurse asked me a few times, was I okay? Was I weak? I just grumbled some sort of answer back!

So back to A and E I went in my wheelchair, awaiting my next big adventure. I kept hearing my name being shouted all over the room but every time I looked out I could see no one. This went on for a good half-hour. Finally the nurse found me, I was going for a camera test and was going to be warded to St Laurels after. She prepped me for the camera test which stung and hurt so bad, I started to lose quite a bit of blood. I was quite nervous about the camera test even though I’ve had it a gizillion times before, once off before the sedation didn’t work at all and I had an awful experience altogether, so needless to say I was very nervous. Everything was happening so fast, one moment I was in A and E and the next I’m in the theatre room. When I asked for sedation my doctor told me that it would only be twenty minutes, that I wouldn’t need it. My body went into autopilot and started shaking from head to toes involuntarily.

All I can remember next is waking up in my bed in Laurels ward, so I’m taking it I got pretty heavy sedation! My mom and nan were there when I came around for a big hug and friendly smiles. I was relieved to have seen them. So I got to have two pieces of soggy toast for dinner because I wasn’t anymore. I gulped down aload of seven-up free too. Within two mintues, I started to spew up everything I ate again. So I had to take things slowly and more injections to help with the nausea.

It was nearly time for bed, so I got the rest of my medication Cymbalta and Zopiclone

and that was me out for the night!

So the next morning I woke up around six of clock wide awake. Time passed so slowly, for some reason each minute seemed like an hour. I tried sleeping but that was no use. I just lumbered on and watched the day pass me. I had one solemn piece of toast for breakfast, which I didn’t mind at all cause I wasn’t feeling hungry or could each much else that was on offer. A 95 year old woman was admitted to the bed next to me, she cant see or hear very well, her son came up to visit her with his wife and mother in-law. She handed over a tiny little teddy bear, and the old woman’s eye’s lit up. She kept saying “God bless you”, and “I Love you”. That woman has not let go of that teddy bear all day long, even in her sleep, when she’s wake she’s kissing and stroking it as if it was a real child, It was kind of heart warming but yet sad to see a woman of her age make that transgression back to the beginning. I didn’t eat much for the dinner but had some nice ice-cream and jelly. My specialist came around to see me and said that my camera tests were okay, that I had mild inflammation and scar tissue and that I was going to try something new. She hadn’t got any news back from my ultrasound though and hopefully I would be allowed out tomorrow! I then passed on supper *shudders at the thought of eggs on toast*. I decided to have a nice well earned shower as I was pretty manky looking, so I rang my mom and told her to take a break seeing me tonight and rest up for once. So now its 20.32pm on Thursday night, so I’ll leave it hear for now, will probs get the head down.

The next day I was given my regular cocktail and jabs of medication, I seen my specialist and I was allowed to go home, my tests seem clear and just awaiting the ultrasound results which I will get once I return as an outpatient.

Overall, nothing much has changed, I’ve been put on old medication that never worked before and a high dose of steroids which has made my face swell like a pufferfish again (see image above) I just feel disheartened that I work be trying a new treatment next. I feel like I’ve taken a step backwards instead of leaping forwards, I’m grateful that the hospital relieved my intense pain but they have shattered my hopes of trying to cope with a normal life with this ailment as of yet.

YOU DON'T LOOK SICK?!

Mon, 19 Mar 2012 10:35:36 -0400

justanotherdeafcrohnie:

No, I don’t. It is so hard to explain to someone when they have no clue! It’s a daily struggle feeling sick on the inside while you look fine on the outside! Please REBLOG THIS if you or someone you know has an invisible illness! (CRPS,Chronic pain,Anxiety, Lupus, Fibromyalgia, Hyper-Mobility Syndrome, Chronic Fatigue, PCOS, Endometriosis, Diabetes, Crohns, Arthritis, Epilepsy,Ms, EDS))

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Mon, 19 Mar 2012 06:45:15 -0400

My First Blog

Sun, 18 Mar 2012 15:41:00 -0400

So this is my first blog, its still a working progress but hopefully it will get there!

So today, I went down to Howth for a stroll and seen some beautiful lil trinkets in the local market. They had beautiful cakes, jewellery and food! Such as these beauts! My waistline felt this!

Got lots seafood for a paella tomorrow, which will be fun doing!

While in Howth, I decided to make a Bucket list! I hate using the terms ‘things to do before you die’, as it has negative connotations with it, so I’m going to make a “list together” and try complete as many as I can :)

I’m compiling it together as we speak and hoping to post it tomorrow some time, I’m really excited about it!

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Fri, 16 Mar 2012 15:06:51 -0400